Parental assistance with children's emotion regulation (ER) is a form of emotion socialization behavior that has recently been operationalized with the development of the Parent Assistance with Child Emotion Regulation (PACER) questionnaire. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• October 2022

Prader-Willi Syndrome (PWS) is a rare genetic disorder associated with emotional/behavioral disturbances. These difficulties are well documented in the literature, but the positive attributes of these individuals are not described. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• January 2022

The results from this review indicate that it would indeed be plausible to adapt the population health approach to sites and schools ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• June 2019

Children with cerebral palsy performed similar haptic exploratory procedures as their typical development peers ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2019
• January 2019

Martyn Amy Symons Finlay-Jones MS AFJ B.A. (Hons) PhD. BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Honorary Research Associate Head, Early Neurodevelopment & Mental Health; Healthway WA Senior Research Fellow 08 6319 1672 +61 8 ...

• Telethon Kids Institute
• Projects

Neuromuscular disorders can lead to nocturnal hypoventilation. Accurate diagnosis of hypoventilation is imperative to guide treatment decisions. This study determined interobserver agreement for a number of definitions of nocturnal hypoventilation in children and adolescents with neuromuscular disorders. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• December 2023

Intussusception is associated with non-enteric adenovirus infections, and Enterovirus B infections ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• December 2014

A risk prediction model allows early identification of children at greatest risk of developing complicated osteomyelitis ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• January 2016

Australia is the only developed country to consistently undertake a developmental census of its children nationwide. The repeated collection of the Australian Early Development Census (AEDC) has provided an unprecedented opportunity to examine the prevalence of developmental vulnerability across Australia's states and territories, the socio-economic distribution of developmental vulnerability across jurisdictions, and how these distributions might have changed over time. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• November 2020

Previous meta-analyses have found higher self-compassion is associated with lower anxiety and depression. The aim of this study was to investigate the efficacy of self-compassion as an active ingredient in the treatment and prevention of anxiety and depression in youth. This was conducted through (i) a systematic review of the literature and (ii) qualitative consultation with young people and researchers in self-compassion. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• September 2021

CDKL5 Deficiency Disorder (CDD) is a rare, X-linked dominant condition that causes a developmental and epileptic encephalopathy (DEE). The incidence is between ~ 1:40,000 and 1:60,000 live births. Pathogenic variants in CDKL5 lead to seizures from infancy and severe neurodevelopmental delay. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• June 2022

Burn injuries are traumatic experiences that can detrimentally impact an individual’s psychological and emotional wellbeing. Despite this, some survivors adapt to psychosocial challenges better than others despite similar characteristics relating to the burn. ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• February 2022