Amy Finlay-Jones AFJ BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Head, Early Neurodevelopment & Mental Health; Healthway WA Senior Research Fellow +61 8 6319 1808 amy.finlay-jones@telethonkids.org.au Head, Early Neurodevelopment & ...

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For most individuals, there is initial developmental progress followed by regression at around 6–30 months. The classic signs of RTT then become apparent. ...

• Telethon Kids Institute
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• Reports and Findings
• 2017
• September 2017

Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement ...

• Telethon Kids Institute
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• Reports and Findings
• 2016
• October 2016

A double-blind, placebo-controlled clinical trial was conducted investigating the use of low-dose oral interferon alpha for preventing acute viral... ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• February 2013

Our objective is to synthesize the best available evidence to determine the incidence and prevalence of falls in intellectually disabled adults in the community ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• July 2017

There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability ...

• Telethon Kids Institute
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• Reports and Findings
• 2020
• May 2020

Unmet language and literacy needs are common among young people who are involved with youth justice systems. However, there is limited research regarding the functional text-level language skills of this population with regard to narrative macrostructure (story grammar) and microstructure (semantics and syntax) elements. In this study, we examined macrostructure and microstructure elements in the oral and written narrative texts of 24 adolescent students of a youth detention centre. The students, who were aged 14- to 17- years, were all speakers of Standard Australian English, and 11 (46%) students met criteria for language disorder (LD). ...

• Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• February 2021

Caregivers play a crucial role in supporting the development of their children's emotion regulation. This study validated the Parental Assistance with Child Emotion Regulation (PACER) Questionnaire in a sample of 491 caregivers of young children ≤ 5 years. ...

• Telethon Kids Institute
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• 2022
• March 2022

To review and synthesise qualitative literature regarding the psychological outcomes following paediatric burn injuries, and to determine if children and adolescents who experience a burn injury have elevated risk of psychopathology following the injury. ...

• Telethon Kids Institute
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• 2021
• December 2021

Use of patient-reported outcome measures in clinical settings facilitate the delivery of better health care to improve patient health outcomes. ...

• Telethon Kids Institute
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• Reports and Findings
• 2022
• September 2022

Tele-dentistry can be useful to facilitate screening of children, especially those living in rural and remote communities, and during the COVID-19 pandemic. This study evaluated the feasibility of tele-dental screening for the identification of early childhood caries (ECC) in preschoolers using an app operated by their parents with remote review by oral-health therapists. ...

• Telethon Kids Institute
• Our research
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• 2023
• January 2023

Desiree Silva DS MBBS, FRACP, MPH, PhD Co-Head, The ORIGINS Project Co-Head, The ORIGINS Project Professor Desiree Silva is co-director for the ORIGINS Project and a professor of paediatrics at the University of Western Australia and Joondalup ...

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