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        Impact of Gastrostomy Placement on Nutritional Status, Physical Health, and Parental Well-Being of Females with Rett Syndrome

        Gastrostomy placement was associated with improvement in BMI in females with Rett syndrome, but its long-term impact on individuals and their families is unclear ...

        Research

        Impact for DCD

        Melissa Gail Matt Jenny Andrew Licari Alvares Cooper Downs Whitehouse Watch and listen to Andrew ML GA MC JA AJ PhD PhD BCA Marketing, BSc Statistics and Applied Statistics, PhD BApplSci (physio) MSc PhD PhD Senior Research Fellow Senior Research ...

        Research

        Moort Vax Waangkiny: Understanding reasons for routine vaccine uptake among Aboriginal children aged <5 years in Perth (Boorloo) metro

        Samantha Christopher Valerie Carla Carlson Blyth Swift Puca SC CC VS CP BSc MPH PhD MBBS (Hons) DCH FRACP FRCPA PhD BSc, MPH, MIDI Senior Research Officer Director, Wesfarmers Centre of Vaccines and Infectious Diseases; Co-Head, Infectious Diseases ...

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        A validation study of a modified Bouchard activity record that extends the concept of 'uptime' to Rett syndrome

        The aim of this study was to investigate the validity of using a Bouchard activity record (BAR) in individuals with Rett syndrome to measure physical... ...

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        The development, content and response process validation of a caregiver-reported severity measure for CDKL5 deficiency disorder

        CDKL5 Deficiency Disorder (CDD) is a severe X-linked developmental and epileptic encephalopathy. Existing developmental outcome measures have floor effects and cannot capture incremental changes in symptoms. We modified the caregiver portion of a CDD clinical severity assessment (CCSA) and assessed content and response-process validity.  ...

        Research

        The impact of weather on time allocation to physical activity and sleep of child-parent dyads - Life Course Centre Working Paper Series 2021

        This study explores the differential impact of weather on time allocation to physical activity and sleep by children and their parents. We use nationally representative data with time use indicators objectively measured on multiple occasions for more than 1,100 child-parent pairs, coupled with daily meteorological data. ...

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        Hospital admissions for skin infections among Western Australian children and adolescents from 1996 to 2012

        The objective of this study was to describe the occurrence of skin infection associated hospitalizations in children born in Western Australia (WA). ...

        Research

        Hospital admissions for skin infections among Western Australian children and adolescents from 1996 to 2012

        Skin infections are a significant cause of severe disease, requiring hospitalization in Western Australian children, particularly with Aboriginal children ...

        Research

        ATOMIC Ears: A Phase IIB randomised controlled trial to assess safety, tolerability and acceptability of a 5-day Dornase alfa treatment as an adjunct therapy to ventilation tube insertion for otitis media in children

        Chris Jennifer Lea-Ann Peter Ruth Brennan-Jones Kent Kirkham Richmond Thornton C J LK PC RT PhD RN PhD MBBS MRCP(UK) FRACP PhD Head, Ear Health Clinical Research Manager Co-Head, Bacterial Respiratory Infectious Disease Group; Microbiology Lead, ...

        Research

        A hospital-based asynchronous ENT telehealth service for children with otitis media: Cost-minimisation and improved access

        The purpose of this study is to explore the effectiveness of a hospital-based asynchronous ear, nose, and throat telehealth service (the Ear Portal) in reducing cost and improving access for children with otitis media. ...

        Research

        Down syndrome or Rett syndrome in the family: Parental reflections on sibling experience

        Siblings of children with intellectual disability have unique family experiences, varying by type of disability. ...

        Research

        Development and validation of the Australian Aboriginal racial identity and self-esteem survey for 8-12 year old children (IRISE-C)

        In Australia, there is little empirical research of the racial identity of Indigenous children and youth as the majority of the current literature focuses on... ...

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