Amy Jenny Susan Desiree Keerthi Finlay-Jones Downs Prescott Silva Kottampally AFJ JA SL DS KK BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BApplSci (physio) MSc PhD MBBS BMedSci PhD FRACP MBBS, FRACP, MPH, PhD Bsc (Hons), ...

• 1. Telethon Kids Institute
• Projects

We hope that through earlier diagnosis and treatment of muscle weakness during sleep, we can prevent future lung failure in children with neuromuscular disorders. ...

• 1. Telethon Kids Institute
• Projects

Vincent Amy Bec Mancini Finlay-Jones Young VOM AFJ BY PhD (Clinical Psychology) BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BSc Nursing, Grad Cert Clinical Nursing, M Mental Health Nursing Senior Research Fellow Head, Early ...

• 1. Telethon Kids Institute
• Projects

Ellen Adrienne Yasmin Harvey Gregory Harman-Smith EH adrienne.gregory@telethonkids.org.au YHS BSocWk(Hons) BSocSci, MPhil BA, BHlthSc(Hons), PhD Senior Project Coordinator Project Officer Head, Early Years Systems Evidence; Head, Tenders Support ...

• 1. Telethon Kids Institute
• Projects
• Past projects

Yasmin Tess Harman-Smith Gregory YHS TG BA, BHlthSc(Hons), PhD BSc (Hons), PhD (Psychology) Head, Early Years Systems Evidence; Head, Tenders Support Unit Senior Research Fellow +61 8 6375 6113 Yasmin.harman-smith@telethonkids.org.au tess.gregory@ ...

• 1. Telethon Kids Institute
• Projects
• Past projects

Yasmin Alanna Harman-Smith Sincovich YHS AS BA, BHlthSc(Hons), PhD BPsych(Hons), PhD Head, Early Years Systems Evidence; Head, Tenders Support Unit Senior Research Officer 08 6375 6108 Yasmin.harman-smith@telethonkids.org.au Alanna.sincovich@ ...

• 1. Telethon Kids Institute
• Projects
• Past projects

Amy Yael Asha Finlay-Jones Perry Parkinson AFJ YP AP BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BPsych (Hons) MPsych (Clin) PhD BPsych (Hons) Head, Early Neurodevelopment & Mental Health; Healthway WA Senior Research Fellow ...

• 1. Telethon Kids Institute
• Projects

Mental health concerns present significant challenges for Australian youth. Arts organizations play a key role in promoting preventative mental health strate-gies through enhancing the social and emotional well-being (SEWB) of youth. However, little is known about how the arts promote SEWB and the processes and contexts through which this occurs.  ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• March 2024

Up to one-third of young people live with chronic physical conditions (eg, diabetes, asthma, and autoimmune disease) that frequently involve recurrent pain, fatigue, activity limitations, stigma, and isolation. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• September 2023

Optic pathway gliomas (OPGs) are associated with significant risk of visual and endocrine morbidity, but data on long-term outcomes in symptomatic patients is sparse. This study reviews the clinical course, disease progression, survival outcomes and long-term sequelae in pediatric patients with symptomatic OPGs in our institution over three decades. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• July 2023

The assessment of sleep biomechanics (comprising movement and position during sleep) is of interest in a wide variety of clinical and research settings. However, there is no standard method by which sleep biomechanics are measured. This study aimed to (1) compare the intra- and inter-rater reliability of the current clinical standard, manually coded overnight videography, and (2) compare sleep position recorded using overnight videography to sleep position recorded using the XSENS DOT wearable sensor platform. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• March 2023

The COVID-19 pandemic has impacted new mothers’ wellbeing and breastfeeding experience. Women have experienced changes in birth and postnatal care and restricted access to their support network. It is unclear how these impacts may have changed over time with shifting rates of infection and policies restricting movement and access to services in Australia and New Zealand. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• August 2022