The EQ-5D-5L is a generic health utility instrument for measuring health-related quality of life (HRQoL), with self-report and proxy report versions for children (EQ-5D-Y-5L). Children with intellectual disability (ID) are a heterogeneous population whose impairments and comorbidities place them at risk of poor HRQoL. This study aimed to describe the content validity and suitability for children with ID of a proxy report version of the EQ-5D-Y-5L as seen by their caregivers. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• December 2023

Perioperative respiratory adverse events account for a third of all perioperative cardiac arrests, with bronchospasm and laryngospasm being most common. Standard treatment for bronchospasm is administration of inhaled salbutamol, via pressurized metered dose inhaler. There is little evidence on the best method of attaching the pressurized metered dose inhaler to the artificial airway during general anesthesia. The aim of this study is to investigate the best method to deliver aerosolized salbutamol via pressurized metered dose inhaler to the lungs of an anesthetized child. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• December 2020

Peter Shelley Jacoby Gorman PJ S BA (Hons) MSc BSc (Hons) PhD Biostatistician Honorary Research Associate Peter.Jacoby@telethonkids.org.au shelley.gorman@telethonkids.org.au Biostatistician Honorary Research Associate Peter Jacoby is a senior ...

• 1. Telethon Kids Institute
• Projects

Here we discuss how skin exposure to sunlight may suppress liver inflammation and the severity of NAFLD. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2015
• May 2015

LGBTQA + people are less likely to access mental health care despite an increased risk of adverse mental health outcomes including suicidal thoughts and behaviours. The present study aimed to explore Australian LGBTQA + young people's perceptions of key factors associated with access to suicide prevention services. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• June 2024

The aim of this systematic review was to review the evidence for serious gaming interventions in improving sensorimotor function in children and adults with cerebral palsy (CP). Seven databases were searched with terms related to serious gaming and CP. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• September 2022

The Group A β-hemolytic Streptococcus pharyngeal carriage rates seen in Uganda (15.9%) are higher than the most recent pooled results globally, at 12% ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• January 2020

Improved public health measures targeting bacterial skin infections are needed to reduce this high burden of skin infections in Western Australia ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2018
• September 2018

Immediate plating of impetigo swabs is the gold standard for bacterial recovery but is rarely feasible in remote regions. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2013
• April 2013

We investigated predictors of nasopharyngeal carriage in Australian Aboriginal and non-Aboriginal children. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2011
• June 2011

This paper demonstrated that the evolution of sleep problems differed between subgroups of girls and women with Rett syndrome, in part explained by age and... ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• September 2014

Gastrostomy assisted the management of feeding difficulties and poor weight gain, and was acceptable to families ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2014
• December 2014